Local Resources
A Spark of Hope
A Spark of Hope provides financial and emotional support to children diagnosed and their families who are unable to adequately pay for the most appropriate and cutting-edge care. Their mission is to relieve the anguish endured by so many families affected financially by this terrible disease.
www.Asparkofhope.com
Ashley’s Hope
Provide support for families of children with a life long illness. We can provide certificate help (gas, food), financial, information and other services. The child must be still in 18 and under (unless the child is still in high school).
P.O. Box 347363
Parma , Ohio 44134
Phone: 1-877-HELP-557
Email: ashleyshope@sbcglobal.net
Web: www.ashleyshope.org
Emily’s Hopeful Holiday
Emily’s hopeful Holiday is an organization that assists local northeast Ohio families with paying their household bills, such as home utility bills, while a child is in treatment at Rainbow Babies and Children’s Hospital.
http://emilyshopefulholiday.wordpress.com/
Leukemia and Lymphoma Society (LLS) of Cleveland
LLS is dedicated to funding blood cancer research, education and patient services. LLS offers a variety of services and programs in support of the mission to cure leukemia, lymphoma, Hodgkin’s disease and myeloma. The society also offers financial reimbursement for some medications, transportation and procedures for those in need. It also offers financial support towards the cost of co-pays for prescription drugs and/or insurance premiums through its Co-Pay Assistance Program. They award grants in the amount of $150 a year for patients in need.
23297 Commerce Park Road
Cleveland, OH 44122
www.leukemiafoundation.org
800-589-5721
216-910-1201 FAX
Prescription Financial Support
Rise Above It
Rise Above It (RAI) provides consultation and financial grants to adolescents and young adults and their families in their fight against cancer. Through financial assistance and personal attention, RAI strives to instill a positive attitude within its recipients, thus allowing them to each day with faith and a fighting spirit
PO Box 40054
Bay Village, Ohio 44140
www.raibenefit.org
Ronald McDonald House of Cleveland
The RMD House of Celveland offers a place to call home at little or not cost so families can access the best health care, regardless of their location. Families may stay together, which can help their children heal faster and cope better.
www.rmhcleveland.org
10415 Euclid Ave.
Cleveland, Ohio 44106
216.229.5758
216.229.5757
The Littlest Heroes
The Littlest Heroes impacts families in Northeast Ohio by providing gift cards for fuel, meals and additional financial support to help them bridge this difficult time in their lives.
PO Box 1406 (Mail)
32000 Aurora Road (Shipments)
Solon, Ohio 44139
440-498-9200 Phone
440-498-7560 Fax
info@thelittlestheroes.org
National Resources
Cancer Financial Assistance Coalition
CancerCare provides free professional support services to anyone affected by cancer (people with cancer, caregivers, children, loved ones, and the bereaved). CancerCare programs include counseling and support groups, education, financial assistance, and practical help. Counseling is provided by oncology social workers and is available on the telephone and face-to-face (available at offices in New York City, Long Island, New Jersey, and Connecticut). Support groups are offered online, via telephone, and in face-to-face groups. Connect® Education Workshops are available via the telephone or via live streaming through the Internet. In the workshops, leading experts in oncology provide the most current information. CancerCare also provides free publications, some in Spanish. Limited grants are available to eligible families for cancer-related costs like transportation and childcare. A section of the CancerCare Web site is available in Spanish.
Cancer Treatment (includes side effects, late effects), Children/Young Adults, Health Insurance/Co-Payments, Lodging (during treatment), Medication, Practical Needs (mortgage, rent, food, transportation)
22nd Floor
275 Seventh Avenue
New York, NY 10001
212-712-4673 (Responds to calls in English and Spanish)
1-800-813-4673 (1-800-813-HOPE) (Responds to calls in English and Spanish)
info@cancercare.org
http://www.cancerfac.org/
CancerCare Co-Payment Assistance Foundation
1-866-552-6729, http://www.cancercarecopay.org
The CancerCare Co-Payment Assistance Foundation is a not-for-profit organization established in 2007 to address the needs of individuals who cannot afford their insurance co-payments to cover the cost of medications for treating cancer. The Foundation is proud to be affiliated with CancerCare, a national not-for-profit organization that has provided free professional support services including counseling, education, financial assistance and practical help to people with cancer and their loved ones since 1944. The Foundation offers assistance for the following conditions: breast cancer, colorectal cancer, gastric cancer, glioblastoma, non-small cell lung cancer, pancreatic cancer, prostate cancer and renal cell cancer.
Chronic Disease Fund
Chronic Disease Fund (CDF) is an independent, non-profit 501(c)3 organization established in 2003. CDF provides financial assistance to underinsured patients diagnosed with chronic or life-altering disease that requires the use of specialty therapeutics. CDF offers assistance for the following cancer-related diagnoses: breast cancer, chronic iron overload, colorectal cancer, liver cancer, multiple myeloma, myelodysplastic syndrome, non-small lung cancer, pancreatic cancer.
http://www.cdfund.org/
1-877-968-7233
Co-Pay Relief Program (CPR) Patient Advocate Foundation Program
The Patient Advocate Foundation’s Co-Pay Relief (CPR) program provides co-payment assistance to insured Americans who financially and medically qualify. CPR provides direct financial assistance to qualified patients by offering co-payment assistance for pharmaceutical products (chemotherapy, injections, and pharmacy prescriptions). CPR call counselors work directly with the patient, as well as with the provider of care, to obtain necessary medical, insurance, and income information to advance the application process. CPR assists patients diagnosed with certain conditions; contact the program to find out if you are eligible for assistance. Information on the Web site is also available in Spanish.
421 Butler Farm Road
757-952-0118 (Responds to calls in English only)
1-866-512-3861 (Responds to calls in English only)
http://www.copays.org
Frequently Asked Questions
http://www.copays.org/faqs.php
Education Law Center
215-238-6970
The Education Law Center provides free legal assistance to parents, students and advocates on education law matters, and advises parents of their rights to special services under the law. The Center also publishes a free guide for parents called Family and Medical Leave Act (FMLA) FMLA mandates that covered employers must grant eligible employees up to a total of 12 work weeks of unpaid leave during any 12-month period to care for an immediate family member (spouse, child or parent) with a serious health condition. The document “The Right to Special Education in Pennsylvania: A Guide for Parents and Advocates” is available through this organization.
www.dol.gov/whd/fmla/index.htm
Foundation for Children with Cancer
The mission of Foundation for Children with Cancer is to provide financial assistance for the families of children with pediatric cancer. By providing tangible and direct financial support, such as mortgage payments, insurance premiums and utility bills, families are given a greater opportunity to focus on their child’s treatment and recovery.
http://www.childrenwithcancer.org/contact-us/
11327 Gravois Road, Suite 202
St. Louis, MO 63126
(866) 800-8860
(314) 843-9300
HealthWell Foundation
1-800-675-8416
http://www.healthwellfoundation.org
The HealthWell Foundation is an independent, non-profit organization that provides financial assistance to underinsured patients living with chronic or life-threatening diseases such as cancer, asthma, and autoimmune disorders. The Foundation helps eligible individuals afford their out-of-pocket costs for prescription drug copayments, coinsurance, deductibles and healthcare premiums. The Foundation offers assistance for the following oncology conditions: breast cancer, carcinoid tumors and related symptoms, chemotherapy induced anemia/neutropenia, colorectal cancer, cutaneous T-cell lymphoma, glioblastoma multiforme/anaplastic astrocytoma, non-Hodgkin’s lymphoma and Wilms’ Tumor. Patients may apply online or by calling 1-800-675-8416. For more information, see the Patient Brochure.
Lymphoma Research Foundation
New York: 1-800-235-6848
Los Angeles: 1-800-500-9976
The Lymphoma Research Foundation (LRF) is the nation’s largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and health care professionals with critical information on the disease. LRF’s mission is to eradicate lymphoma and serve those touched by this disease. LRF offers a limited financial assistance program for uninsured and underinsured lymphoma patients undergoing treatment. LRF may be able to pay a portion of patients’ medical bills to the doctor or hospital. Offers a free helpline and information service for referrals to financial assistance programs, legal and insurance help.
National Marrow Donor Program
1-888-999-6743
The NMDP Office of Patient Advocacy (OPA) is available to help patients and their families from diagnosis through survivorship with information and support services related to blood and marrow transplant. Personal telephone counseling and education, resource materials and patient financial assistance are available. OPA case managers can provide support related to insurance coverage issues and discuss potential financial resources. To contact an OPA case manager call 1-888-999-6743 or email patientinfo@nmdp.org . The OPA offers financial aid programs (Search Assistance Funds, Transplant Support Assistance Funds, AirCares through Northwest Airlines) to help patients in need of a bone marrow or cord blood transplant. Patients are only eligible if they are using the NMDP Registry for their donor or cord blood. Eligible patients must apply through their NMDP affiliated transplant center—applications are not accepted directly from patients. Additonally, OPA offers the following resources: Mapping the Maze: A Patient’s Guide to Blood Stem Cell Transplant, and the financial fact sheets, Your Finance and Insurance Matters and Your Rights and Benefits
National Organization for Rare Diseases (NORD)
1-800-999-6673 (voicemail only)
The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. NORD offers a Rare Disease Database, which provides reports in patient-friendly language on approximately 1,200 rare diseases, including several rare cancers. NORD also provides an RN and a genetic counselor who are available to answer questions at RN@rarediseases.org andgenetic_counselor@rarediseases.org .
International Resources
The Max Foundation
1-888-462-9368, http://www.themaxfoundation.org/
The Max Foundation is a US-based international non-profit dedicated to improving the lives of people living with blood cancer and rare cancers worldwide. The organization focuses attention on assisting disadvantaged populations in developing countries and elsewhere, including the US. The Max Foundation’s International Patient Helpline provides free services of advocacy, emotional support, informational referrals and help finding emergency funding. Through a highly dedicated team of US-based and local advocates based in targeted countries, families receive personalized support services. Each year The Max Foundation provides free services to over 16,000 families in more than 100 countries.
